Provides financial assistance to young adults as they regain momentum in their lives after cancer. Janet Woodcock, M.D. Program offers scholarships to students living with Type 1 diabetes. Members of the CTCF community at the Georgia State Capitol in 2020. How it works This scholarship program is through Sanofi. Provides a scholarship created to provide youth on home parenteral and/or enteral nutrition (HPEN) the chance to experience summer camp. Program awards a $1,000 scholarship to applicants who are cancer survivors who value the importance of education and show it with perseverance and determination. Program awards one scholarship per semester in the amount of $1000 to a high school, undergraduate, or graduate student who has cerebral palsy. Program offers educational scholarships to people living with epilepsy or family members and caregivers of people with epilepsy. Suite 700 Special Needs, Cognitive Disability, Physical Disability. Learn More About the Grant. Individuals may apply for the 2020#RAREisScholarship Fund throughRareScholarship.org. An educational scholarship for an individual diagnosed with epilepsy. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Veterans - Disability/Injured, Military related, Military wounded. Provides financial assistance to individuals diagnosed with hemophilia A or B, including those with inhibitors (Factor VII or IX deficiency), or von Willebrand Disease. Program awards scholarships to individuals who have been diagnosed with cancer, or a critical/life threatening disease/illness and are pursuing their higher education. Website: bionews.com Priority consideration will be given to members of a Students for Rare Club or Chapter and first- . Financial assistance grants for people under 21 without medical insurance to put towards diagnosis and treatment. RAREis and the HORIZON logo are trademarks owned by or licensed to Horizon. A scholarship for college students with a medically recognized physical or mental disability. Mental Illnesses, ADHD, Bi-Polar Disorder, Depression, Eating Disorders, Posttraumatic Stress Disorder, Schizophrenia. August 19, 2020. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to be used for college . Military related, Paralysis, Military wounded, Paralysis due to Spinal Cord and/or Brain Injury. Scholarships for a current paid member of TSSUS to attend the 3-day National Turner Syndrome Conference held each summer in different cities across the United States. The number of scholarships given varies. Scholarship program created to assist cancer survivors who plan to continue their education in college or vocational school programs. The application deadline is Aug. 28 at 3 p.m. CDT. Full and partial scholarships awarded to families with children attending DYF programs. Website: bionews.com Individuals may apply for the 2020 #RAREis Scholarship Fund through RareScholarship.org. Program awards a scholarship to men and women with hemophilia pursuing higher education. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. An education scholarship for active duty or honorably discharged U.S. veterans. They must be enrolled full time sophomores or juniors at the time of application. Diabetes, Diabetes - Type 1, Juvenile Diabetes, Diabetes-Juvenile. Scholarships are open to any adult living with a rare disease in the U.S. who is over the age of 17. STUDENT SCHOLARSHIP PROGRAM FAQs Who is eligible for a student scholarship award? Program awards a scholarship to a blind or visually impaired female undergraduate student studying music. Browse by Disease. Program awards a scholarship to an individual pursuing a junior college, undergraduate or graduate degree student who has a sibling with down syndrome. Applicants do not need to be pursuing a degree to be eligible, but they have to be U.S. residents over the age of 17. Program offers scholarships to incoming college freshman with Type 1 diabetes pursuing a higher education at an accredited four year school. A scholarship for students with a diagnosis of Bipolar Disorder who are currently in treatment. #RAREis Scholarship Fund The program is currently closed. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Research & Scholarship. Disability - Mobility, Disability - Cognitive, Disability - Developmental, Disability - Emotional, Disability - Intellectual, Disability - Mental, Disability - Physical, Special Needs, Asperger Syndrome, Learning Disability, Depression, Anxiety Disorders, Emotional Disability, Communication Disorders, Mobility Disability, Neurologic, Brain, and Seizure disorders. A GPA of 3.0 is required and commitment to extracurricular activities. Program provides two (2) scholarships to students who are blind or visually impaired pursuing higher education in the field of engineering or in computer, physical, or life sciences. Program provides scholarships to further educational opportunities for children with cancer accepted to accredited collegiate studies. A scholarship for college students that are diagnosed with lupus. Scholarships that support completion of degrees by students with disabilities who need financial assistance at selected colleges and universities. Collapse All Expand All AAAI Scholarship AAHD Frederick J. Krause Scholarship on Health and Disability AbbVie Cystic Fibrosis Scholarship Annual Traumatic Brain Injury Scholarship Baer Reintegration Scholarship $3,000 scholarship to an ROTC student in the Air Force option who is attending a university located in the AFCEA Mid-South Region of the United States, including Louisiana, Mississippi, Alabama, and northwest panhandle of Florida. A scholarship for youth ages 15 or younger that are diagnosed with down syndrome to assist with costs for educational or recreational opportunities. Program offers scholarships to graduating seniors who have/had alopecia. Bereavement, Military related, Disabled - Veteran. Program provides a scholarship to a student of any age diagnosed with hemophilia B, and are pursuing post-secondary education. Program offers a scholarship for deserving students with a disability who are pursuing undergraduate/graduate studies. Provides eligible students scholarship funds toward furthering education through private or public college/university. Program offers awards to students with a parent diagnosed with ALS, continuing their education. | Program awards scholarships for the legally blind attending a technical college. Educational scholarship awards of $2,500 to immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency to further higher education. Program awards scholarships for LGBTQ high school seniors who are actively and substantially involved in community service. A scholarship for youth ages 15 or younger that are diagnosed with autism to assist with costs for educational or recreational opportunities. For questions about the scholarship program, email Lindsey Cundiff, the foundations associate director of patient engagement, at [emailprotected], 3 W Garden St An educational scholarship for students attending a California college/university with an intellectual disability or is on the autism spectrum. Program offers scholarship for students with hemophilia B and their sibling to pursue higher education. Cancers, Cancer - All in a loved one, Child with a parent or sibling who has or had cancer, Childhood Cancer. A scholarship for people with hemophilia B to use for any type of post-high school education. Scholarship is for United States students who are for impacted by a hystiocytic disorder. Go here to apply. A scholarship for young adults who have been affected by cancer and are seeking higher education. Program offers a scholarship to a high school senior who is hard of hearing and continuing their education. Two $2,500 scholarships each year awarded to immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency. Shes won a Society of Professional Journalists award for outstanding reporting. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to . Provides scholarships to students with disabilities. Program offers scholarships to college students affected by gastro-esophageal cancers in their families. An educational scholarship for students attending a California college/university with a learning disability in math. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to . An educational scholarship for college students with a family member or loved one suffering with a disability. Program provides financial assistance to help students affected by behavioral health issues move forward in their education. Special Needs, Disability - Physical, Physical Disability, Disability - Mobility, Disability Requiring Assistive Technology, Mobility Disability. An educational scholarship for an individual diagnosed with Autism Spectrum Disorder who intends to further his or her education at a college, junior college or vocational/trade school. Disability - Physical, Disability - Cognitive, Disability - Emotional, Learning Disability, Social Disability, Sensory Disorders. The health information contained herein is provided for educational purposes only and is not intended to replace discussions with a health care provider. Program provides scholarships for college students with a major limb amputation, who will be attending an accredited university as a full time student. Mary has written extensively for The New York Times, and her work has appeared in publications such as Time, Newsweek, Fortune, and the Chicago Tribune. Awardees will be notified in October. The RAREis Scholarship Fund is designed to elevate the dialogue within the rare disease community and create opportunities to listen, share, and educate each other about the rare disease experience, said Tim Walbert, chairman, president, and CEO of Horizon Therapeutics, which is sponsoring the program. Email: [emailprotected] Mary has written extensively for The New York Times, and her work has appeared in publications such as Time, Newsweek, Fortune, and the Chicago Tribune. An opportunity for patient advocacy leaders to improve the health and mental well-being of the rare disease community-including children, siblings, caregivers/care partners and those who are grieving. Scholarships will be awarded based on the essays, demonstrated leadership, participation in school and community activities, work experience, academic performance, and financial need. Addiction, Alcohol dependence, Chemical Dependency or Substance Abuse. Program awards scholarships for self-identifying lesbian, gay, bisexual, and transgender/gender non-conforming high school seniors who are pursuing higher education. Program offers scholarship for those affected with a bleeding disorder pursuing further education in a health related field. Programs are listed in alphabetical order by program name. An educational scholarship for an individual diagnosed with Autism Spectrum Disorder. A scholarship for a disabled student, either a graduating high school senior accepted into an accredited school or an undergraduate student. Suite 700 Scholarship awards from $500-$2000 to subsidy college education for immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency. Program offers scholarship to any girl who is motherless for any reason to assist in furthering their education goals. Program awards a scholarship to an individual with severe hemophilia A to further their education. He received a T-32 NIH Predoctoral Research Fellowship Award (2019/2020), a year-long clinical-translational research training in digestive diseases at the Massachusetts General Hospital, Harvard . Award Winning Pharmaceutical Sales Professional *Orphan Drug * Specialty Pharmacy *Neuroscience *Rare Disease *Neurology. $1,000 Scholarship for those who were seriously injured in a car accident to help them achieve their goal of going to college by easing the financial burden of secondary education. Last Modified 04/15/2020 16:42:26. It does not provide medical advice, diagnosis or treatment. All high school, undergraduate and graduate students with an interest in rare diseases are eligible to apply. An educational scholarship for cancer survivors diagnosed at 20 years or younger. by Program awards scholarships to men with hemophilia or von Willebrand disease, or to their immediate family members. All applications are de-identified prior to review, and will be evaluated using a scoring rubric by a panel of Sanofi employees who are familiar with the rare disease community but do not currently work in the space. Provides three $1000 scholarships to individuals impacted by hemophilia or other significant bleeding disorder. Program awards scholarship to a student entering college who has been affected by leukemia. Program offers scholarships to students diagnosed with clinically significant bilateral hearing loss. Military related, Veterans - Disability/Injured, Veterans - Disability/Injured-Families. We want our community to have an opportunity to pursue their dreams to be teachers, doctors, lawyers, executives, artists, or anything they aspire to be., For the past 11 years we have been working to remove roadblocks for the development of lifesaving treatments and diagnostic opportunities for rare disease patients, she added. Program awards scholarships to a high school senior who are patients of Colorado Allergy & Asthma Centers, P.C., for a minimum of one year pursuing higher education. Program offers scholarships to those affected by inherited bleeding disorders pursuing higher education. While scientific advances continue for many of these diseases, individuals living with such disorders still encounter obstacles in achieving traditional life milestones. Rare Disease Day 2020. Program provides a scholarship award to a graduating high school senior with a documented learning disability (LD) and/or ADHD who will be enrolled in a full-time bachelors degree program in the fall. Coronavirus disease 2019 (COVID-19) is an emerging infectious disease caused by a newly discovered coronavirus that has reached pandemic proportions impacting millions globally. Please return then to view the updated Eligibility and Awards for the upcoming academic year! Program awards a scholarship to the immediate family member of a person with a bleeding disorder. The Scott and Kim Verplank Foundation provides renewable annual college scholarships for students with disabilities pertaining to Type 1 Diabetes up to $10,000 for tuition, fees, and books.Students must renew their application every year. Program awards educational scholarships to support students who live with the ongoing challenges and complexities of hydrocephalus pursue higher education. Scholarships are awarded biennially to legally blind selected applicants studying for a career in the field of services to children or adults who are blind or visually impaired. Program provides a scholarship to a high school senior with an identified learning disability pursuing higher education. Program provides financial assistance to individuals with hemophilia for GED certification. Scholarships are open to any adult living with a rare disease in the U.S. who is over the age of 17. Scholarship award for any current or soon-to-be under grad who has had their life altered due to a bodily injury, be it their own injury, that of a loved one, or an influential individual. Now, thanks to the #Rareis scholarship fund, we can help patients not just to live with their disease, but to thrive.. Von Willebrand Disease or rare factor deficiencies pursuing higher education. Forming a new rare disease community. Provides college scholarships to talented athletes diagnosed with type 1 diabetes. Applicants must plan to enroll full- or part-time in undergraduate or graduate study at an accredited two- or four-year college, university, or vocational or technical trade school next spring. Program awards a scholarship to young cancer survivors. A scholarship for high school seniors, undergraduates, graduates as well as international students with a documented learning disability. Program offers scholarship to survivors of childhood cancer who are seeking higher education. For questions about the scholarship program, email Lindsey Cundiff, the foundations associate director of patient engagement, at [emailprotected], 3 W Garden St Go here to apply. Program awards scholarships to graduating high school senior students, pursuing higher education and have a parent who has passed away due to cancer, or who is currently battling cancer. Program awards one-time and recurring scholarships to students who are affected by cancer and are in pursuit of a post secondary education. Bereavement, Cancer - All in a loved one, Childhood Cancer. Program provides financial assistance for dependents of victims, or those involved in rescue efforts in terrorist attacks in the 9/11, pursuing post secondary education. Browse the GARD list of rare diseases to find topics of interest. Program awards hope and inspiration by granting need-based scholarships to high achieving cancer survivors interested in the food service industry. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to be used for college or training program costs next spring. Program offers financial support to students whose lives have been affected by rheumatoid disease. Thanks to the support of Horizon Therapeutics, The EveryLife Foundation is pleased to announce its third year of the #RAREis Scholarship Fund, a scholarship dedicated to the rare disease community. $3000 scholarships to students of color with autism pursuing a post-secondary, undergraduate education or vocational-technical training at a 2- or 4-year college; trade, technical or vocational school; or a cooperative life skills program. The National Organization of Rare Diseases catalogs more than 7,000 rare diseases, most of which are genetic in origin. Scholarships will be awarded based on the essays, demonstrated leadership, participation in school and community activities, work experience, academic performance, and financial need. Foundation offers memorial scholarships for students who are burn survivors, have been treated for burn/soft tissue injuries, or suffer from frost-bite, pursuing higher education. Program provides educational scholarships to students diagnosed with Hemophilia A or B. The RAREis Scholarship Fund is designed to elevate the dialogue within the rare disease community and create opportunities to listen, share, and educate each other about the rare disease experience, said Tim Walbert, chairman, president, and CEO of Horizon Therapeutics, which is sponsoring the program. She began her career at United Press International, then spent a decade reporting for the Bureau of National Affairs, Inc. (now Bloomberg Industry Group). In addition to a current transcript of grades and diagnosis verification form, applicants must submit an essay explaining their goals and how the scholarship would help achieve them. Program awards scholarships to students diagnosed with essential tremors pursuing higher education. The program will provide a one-time scholarship grant of $5,000 to pursue educational enrichment opportunities, including accredited courses, trade programs and two-and four-year degrees. Program provides scholarships to students who are diagnosed with colitis, Crohns, IBS, or any chronic medical issue. Program awards scholarships to children and young adults living with sickle cell/and or thalassemia. Provides a scholarship to a student affected by cancer. Childhood Cancer, Child with a parent or sibling who has or had cancer. by Program offers scholarships to young adults who have lost a parent or guardian to cancer, pursuing higher education. by Mary Chapman August 19, 2020. Programs provides an annual scholarship of $500 for up to 4 years, to a graduating high school student diagnosed with stickler syndrome. All scholarship recipients will be selected by an EveryLife Foundation-appointed, independent board of reviewers. Program offers a scholarship to a student diagnosed with cancer. This scholarship is for young women majoring in Business. Provides over 10 scholarships to students with learning differences who have proven financial need and other specific requirements. If you're living in the U.S. with a rare disease and age 17 or older, this scholarship could help you pursue your learning goals. Program provides educational scholarships to disabled adults pursuing a career or vocation in any artistic field. Please check back in March for program information for the 2023 academic year. Program provides two $500 scholarship to college and university students with a mobility disability. NORD Leads the Way: 900+ Influential Rare Disease Stakeholders from FDA, Patient Organizations, and Industry Gather for #NORDSummit 2023 . To support people living with rare disease while navigating obstacles to education, we have partnered with the EveryLife Foundation for Rare Diseases to establish the #RAREis Scholarship Fund. A scholarship to help individuals with the financial funds to attend Indian Trails Camp. Pensacola, FL 32502 Disability - Mobility, Mobility Disability, Disability Requiring Assistive Technology, Special Needs, Wheelchair Bound, Paralysis, Paralysis due to Spinal Cord and/or Brain Injury, Paraplegia. Program offers scholarships for individuals with disabilities that are interested in earning a Sport Pilot license. Applicants must plan to enroll full- or part-time in undergraduate or graduate study at an accredited two- or four-year college, university, or vocational or technical trade school next spring. Authors feature an atypical case of COVID-19 presenting with a rare cause of abdominal pain and severe hyperglycemia. Program provides scholarships of up to $1000 to young men and women who are cancer survivors. Rare Diseases . $2,500 Educational scholarship for immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency. Megan's fund provides college and trade school scholarships to young adults who have had a diagnosis of hemiplegia since childhood. Scholarships awarded annually to one male and one female athlete. While scientific advances continue for many of these diseases, individuals living with such disorders still encounter obstacles in achieving traditional life milestones. Kidney and Urology Foundation of America, Inc. Lupus Foundation of America Florida Chapter, Lupus Inspiration Foundation for Excellence (L.I.F.E. CHASA awards athletic scholarships to young athletes who have had hemiplegia since childhood to cover expenses for specific athletic competitions. A scholarship to support homicide survivors and victims of other crimes who are undergoing treatment for PTSD through any recognized service. Program provides up to 3 scholarships towards college education to siblings of childhood cancer survivors. Awards will be provided to 32 recipients for the Spring 2021 semester. Provides awards to individuals with Down syndrome ages 18 or older, who brings public awareness to their community. Awardees will be notified in October. Preference is given to students with a documented serious medical disability. Applicants must accept their award by Friday . If you receive a scholarship award, you must notify NORD that you are accepting your award by Monday, August 17, 2020 at 11:59 . In the U.S., this means a disease that affects fewer than 200,000 residents at any given time. Program awards scholarships for students with or impacted by a loved one with mesothelioma pursuing higher education at a four-year college or university. A scholarship to help with finances needed to attend any of the Adaptive Sports Center programs. Program offers scholarships to individuals with disabilities pursuing higher education. . Program awards (2) scholarships to individuals with down syndrome who are pursuing educational or job training opportunities beyond high school. Applicants must be Histio Warriors/patients, siblings, or child/grandchild of an adult patient. Scholarship awarded to student seeking higher education who have been affected by cancer, either by their own diagnosis or that of a loved one. Program awards a scholarship to studentswith diabetes pursuing higher education. Program offers scholarship to existing licensed individuals who have become disabled and wish to return to flying. Scholarships to LGBTQ students currently enrolled in Science, Technology, Engineering, or Mathematics. Program awards scholarships for children who've lost a parent to breast cancer. Mary graduated from Wayne State University with a degree in journalism. Offers scholarships between to cancer survivors between the ages of 17-39. Program provides 9 Scholarships of up to $10,000 awarded to individuals with a dermatologic conditions seeking higher education. Program awards scholarships of $1000 to fourth year undergraduate and graduate students who have a disability and are pursuing a higher education. Cystic Fibrosis, Chronic, Serious or Life Threatening Illnesses. Research & Scholarship Overview; Patient Care Research. webmaster. Primary Immunodeficiency, Bleeding Disorders, Cancers, Infertility, Hepatitis C, HIV Treatment/Prevention, Diabetes, Rheumatoid Arthritis, Multiple Sclerosis, Crohn's Disease, Asthma, High Cholesterol. Scholarships awarded to current or former cancer patients of the Valerie Fund for post-secondary education expenses. Provides scholarships to children who have or have battled a pediatric cancer, and their siblings. Program awards a scholarship to students with autism disorders pursuing higher education in a technology field. Lupus, Systemic Lupus Erythematosus (SLE). Psoriasis, Psoriatic Arthritis, Crohn's Disease, Ankylosing Spondylitis, Rheumatoid Arthritis, Uveitis, Ulcerative Colitis, Hidradenitis Suppurativa, Juvenile Idiopathic Arthritis. Scholarship for high school students and those currently enrolled in college, diagnosed with type 1 diabetes. Program offers scholarships to students who have suffered traumatic brain injuries. Program awards scholarship to men with hemophilia or von Willebrand disease, and their immediate family members pursuing higher education. Are actively and substantially involved in community service time of application or B research & amp scholarship. Rare Club or Chapter and first- scholarship program is currently closed for specific athletic competitions a degree in.. 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